I finally had C take some pictures of me. Pictures on the right are from me today. Haven’t taken a shower in over 24 hours, no vaseline, just a little bit of The Home Apothecary Lemongrass balm on my arms.
My chest.. man that thing oozed, scaled, and itched so bad. Still have a few little very small eczemateous areas on the sides of my chest. But overall, doing MUCH MUCH MUCH better. Doesn’t even bother me.
This is the infamous red sleeve at about 2 months. I remember that this is one of the first really bad days I had in withdrawal. My inner arms aren’t perfect. I still have a few spots that itch. Looks a lot like my “original eczema” and I wonder if this is just that.
The picture on the left is from when my legs were oozing and crusting over. You can see how swollen and crusty they are here. This was about 2-3 months into withdrawal. My lower legs get dry after swimming in the ocean, but otherwise, are completely normal!
The Second Annual ITSAN conference was last weekend in Santa Monica, CA. It was great to meet some new people and reconnect with old friends.
Just wanted to share a before and after picture. Last year, I made a video with Mark Palace, an ITSAN Board Member. I took a screen shot of my face, compared with my face this year. I do not look like the same person.
Healing happens, albeit extremely slow. I still can’t believe how much better I am doing. Those terrible days are a blur and I have a tough time remembering them.
Hope all of my skin friends out there are having a better day.
In just 11 days, I will officially be in my third year of topical steroid withdrawal.
I felt like I should stop by and give a little update. Wait for it… I am doing REALLY WELL!!!!! Now that I have typed those words, I’m probably going to flare horribly.
A few weeks ago, I went on a 12 mile bike ride down the coast. I wore a tank top and a bathing suit. At one point on the ride, we stopped, locked up our bikes, and jumped in the ocean. I got out of the ocean, patted dry, and laid in on the beach. I got sandy, sweaty, salty, wet, dry, etc. And guess what? It had no effect on my skin. I did the same thing this past weekend and even got a sun burn. And my skin is just fine. Two months ago, this would not have been possible. The 1 1/2 years of withdrawal, my life revolved around the bath. Once I was out of the terrible part of withdrawal and I was able to leave the house, we would plan to do only one or two things. For example, I could go out to dinner, but I couldn’t go to dinner AND a movie because I couldn’t be away from the bath for that long. We could go to the grocery store and the pet store, but we couldn’t do anything else.
My skin is doing pretty well. I stopped moisturizing my torso about a month ago. I was moisturizing my arms, legs, neck and face daily, but I am in the middle of a no moisturizing experiment. I am only four days in, so I’m not sure I have any results to report yet.
I recently posted this picture to one of the support groups. About 4 months v. 23 months.
And a few other pictures from some fun times!
Stay tuned for a two year update!